Research and development of new tools to fight and better understand seizures are critical aspects of our mutual goal to create a seizure-free world. We want to help organizations get your feedback and participation to shorten the time for those tools to get to market.
LIFU Ultrasound Trial
Low-Intensity Focused Ultrasound for Drug Resistant Epilepsy is a clinical trial led by Dr. Fan, an Assistant Professor at UCSF in the Department of Neurology (Division of Epilepsy) (NCT07680842, https://clinicaltrials.gov/study/NCT07680842?term=NCT07680842&rank=1). This study investigates whether low intensity focused ultrasound (LIFU), a novel non-invasive neuromodulation technology, improves seizure frequency. Low-intensity focused ultrasound uses soundwaves to target deep brain regions without surgery. Current evidence suggests that LIFU has potential reduce seizure activity in treatment-resistant epilepsy.
Enrolled participants will have in-person visits at UCSF and keep a seizure diary. As with any clinical trial, participation is voluntary, and participants may choose to leave the study at any time. Participants will also be compensated per visit.
For further information, any questions, or discuss enrolling, please contact lifu.research@ucsf.edu. Additional information may also be found on Dr. Fan’s lab website, https://epilepsyfus.ucsf.edu/, and UCSF profile, https://profiles.ucsf.edu/joline.fan
Other Epilepsy Clinical Trials at UCSF
https://clinicaltrials.ucsf.edu/epilepsy
Epilepsy Clinical Trials at UC Davis
https://studypages.com/ucdavis/studies/?search=epilepsy
EYSZ
Rachel Kuperman, a pediatric neurologist, spent 10 years directing the clinical epilepsy and research programs at UCSF Benioff Children’s Hospital in Oakland. During her time there she was frustrated that she did not have the seizure data she needed to provide the best care possible for her patients. In 2018, she took matters into her own hand and founded Eysz Inc, where she is leading a team in developing an eye tracker to identify seizures and side effects from medications. At Eysz, they are currently working to better understand the challenges of living with epilepsy and we would love to hear from patients, caregivers, and families about your journey. If you have 15 minutes to share with them, please reach out to niki@eyszlab.com.
Brain Health Registry
If you are 18 years or over, you can help the Brain Health Registry speed up cures for Alzheimer’s, Parkinson’s, depression, PTSD, and other brain disorders. The Brain Health Registry promotes healthy brain function through the prevention of brain diseases, brain disorders and brain injuries that affect brain function in adults. More information here. Ask your whole family to join whether or not they have epilepsy! Invite your friends! Our Brains Matter!
Other Clinical Trials
Click HERE to visit our national Epilepsy Foundation website to learn more about Clinical Trials.