Our son was born full-term with no complications. He was very healthy and developed on track during his early months. One evening, he dropped his head abruptly about 4 times, crying. Then, he burped. Maybe it was just gas. But the next evening, it happened again…and then a third night, around the same time […]

  Since I was diagnosed with epilepsy at age 5, I’ve never experienced the range of emotions of shock, rage, fear, sadness that others have upon being diagnosed. It’s always just been part of life. My seizures were generally focal aware (simple partial), but progressed to being focal impaired awareness (complex partial). As a kid, […]

  It took me a long time to understand why epilepsy entered my world after being seizure-free for the first 19 years of my life. Truthfully, I spent a lot of years asking myself, why me? I was bitter at first about my epilepsy for quite some time. My bitterness was due in part to […]

  My name is Ian, and when I was diagnosed with epilepsy I honestly didn’t know what to think. The question floating around in my head was “why me?”. Though it was burdensome, I learned that perseverance is necessary for taking on the unknown. Sometimes in life, we aren’t dealt the cards we want, but […]

  I was really fortunate in my early years that I rarely felt ostracized for my epilepsy. I was lucky enough to have protective friends and naive enough not to notice the mimicking or rude comments I’d hear about later. I remember one friend on the playground in a game of tag saying, “He’s having […]

My seizures had a pattern. I would feel an aura in my abdomen area and it was very indicative that I was about to have a seizure. So when I felt courageous, I would tell someone. I didn’t always feel courageous, so you know, I probably kept it to myself. But I would have this […]