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What Is Epilepsy?
About SUDEP
Meet Our Staff/Volunteers
Board of Directors
Professional Advisory Board
Contact Us
Programs
Support Groups
Therapeutic Art
Humans of the Storm
PACES in Epilepsy
Peer2Peer Mentorship
Scholarships
Trainings & Education
Events
Register/Upcoming Events
Gala 2024
Monterey Walk for Epilepsy
Monterey Symposium
Annual/Past Events
Partner Community Events
Photo Galleries
Resources
Doctors & Centers
Guides & Tools
Service Dogs
Books
Interviews
Humans of the Storm
Research Spotlight
NEWS
Blog: Making Waves
Newsletter
♥ DONATE
DONATE
VOLUNTEER
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Posts in Personal Stories
Seizure Free
It has been almost 11 years since my last seizure and feeling good.I am on ssdi and medicare anyone on […]
by
Website Visitor
on
Sep 7
Read more
EFNC Community Support
Sharing your personal experiences can truly help others. Thank you in advance!
by
Website Visitor
on
Sep 7
Read more
Epilepsy – My Invisible Disability
Epilepsy – My Invisible Disability My invisible disability is epilepsy which has been an active part of my life for […]
by
Website Visitor
on
Mar 18
Read more
Learning how to be my own advocate
I developed epilepsy while in high school. I suffered from both petit mal and grand mal seizures. After undergoing several […]
by
Website Visitor
on
Mar 18
Read more
Hi My Name is Chris.
I was born with a really rare disorder called Glucose Transporter Deficiency Syndrome. I had my first seizure when I […]
by
Website Visitor
on
Feb 6
Read more
Morteza’s story
Hi My name is Morteza , when i was in high school , almost end of my graduation . i […]
by
Website Visitor
on
Oct 16
Read more
Will’s Story
My epilepsy story contains two very different neurological events. I was born in 1975 with a defect in my left […]
by
Olivia S.
on
Sep 11
Read more
Melissa’s Story
My name is Melissa. The day before my first day of high school, I had stayed up all night for […]
by
Olivia S.
on
Sep 11
Read more
Russell’s Story
Dear Health Care Professional, The care and information you provide people with epilepsy is critical. As a doctor, you are […]
by
Olivia S.
on
Sep 11
Read more
Todd’s Story
My name is Todd Teragawa. On November 6th, 2014 my brother Lonnie died of a grand mall seizure too young […]
by
Olivia S.
on
Sep 11
Read more
Aly’s Story
In March 2012 Aly was playing at school and fell off the Monkey Bars and hit her head and broke […]
by
Olivia S.
on
Sep 11
Read more
Angelica’s Story
When I was 9 years old I had my first seizure. I was sleeping when my younger sister saw me […]
by
Olivia S.
on
Sep 11
Read more
Jodi’s Story
Who is Nikolas Ortiz? Nikolas Ortiz was born in October of 2003. Nikolas is a fun, loving, thoughtful, and happy […]
by
Olivia S.
on
Sep 11
Read more
Spencer’s Story
Our son Spencer was born in 2008 as a full term healthy bundle of joy weighing in at 9 pounds […]
by
Olivia S.
on
Sep 11
Read more
Chelsea’s Story
My name is Chelsea. I’m 23 years old & a full time worker at a nursing home. I was born […]
by
Olivia S.
on
Sep 11
Read more
Meredith’s Story
My name is Meredith, I’m 27 living in SF working in retail ecommerce. I was diagnosed at the age of […]
by
Olivia S.
on
Sep 11
Read more
Chelsea’s Story
Hi my name is chelsea loh iam 30yrs old i started having seziures at 19 yrs old my experience me […]
by
Olivia S.
on
Sep 11
Read more
Renee’s Story
All I remember is coming to a green traffic light and then, all of a sudden, the next thing I […]
by
Olivia S.
on
Sep 11
Read more
Emily’s Story
I went through epilepsy from the time I was 8 until 17. After trying every type of seizure medicine, doing […]
by
Olivia S.
on
Sep 11
Read more
Van’s Story
Q: Tell us a bit about yourself and your epilepsy. A: I had my first seizure in Vietnam when I […]
by
Olivia S.
on
Sep 11
Read more
Shaun’s Story
There is hope. I lived without it for two decades until an unforseen turn of events gave me the chance […]
by
Olivia S.
on
Sep 11
Read more
Nicole’s Story
My daughter Sarah was exactly 5 months old when she had her first seizure, thankfully we were in the emergency […]
by
Olivia S.
on
Sep 11
Read more
Kathy’s Story
My story is about being a survivor. At the age of two I was adopted making no information available of […]
by
Olivia S.
on
Sep 11
Read more
Samantha’s Story
Hello, my name is Samantha i have MAE epilepsy i have had it my whole life i have been to […]
by
Olivia S.
on
Sep 11
Read more
Aaron’s Story
I am 25 years old and didn’t realize that I have been having different types of seizures for the majority […]
by
Olivia S.
on
Sep 11
Read more
Amy’s Story
My daughter, Madison, began having seizures some time in December 2009, a couple of weeks before her 6th birthday. She […]
by
Olivia S.
on
Sep 11
Read more
Stacie’s Story
Below is a short story that I wrote several years ago about my experiences to help inspire others in challenging […]
by
Olivia S.
on
Sep 11
Read more
Kerry’s Story
Taking Control of My Health: I have had epilepsy from the age of 7. Throughout elementary, high school and even […]
by
Olivia S.
on
Sep 11
Read more
Michelle’s Story
What started out as outbursts of laughter for Emily ended up being epilepsy. I spoke to the nurse at her […]
by
Olivia S.
on
Sep 11
Read more
Tami’s Story
I never knew much about epilepsy, still really dont. Ryan, my 18 year old son, started having seizures a couple […]
by
Olivia S.
on
Sep 11
Read more
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